An updated guide to living with metastatic breast cancer by survivors.

Young Survival Coalition (YSC), is the premier organization dedicated to young women with breast cancer. Established in 1998 by three young survivors, Young Survival Coalition (YSC), based in New York City, began as a grassroots organization for young women diagnosed with breast cancer to increase their length and quality of life.

Now, YSC provides free resources, connections and educational materials nationwide so young women with breast cancer feel supported, empowered and hopeful. YSC aims to educate and influence the medical, research and legislative communities to address breast cancer in young women, and to ensure that no young woman faces breast cancer alone.

YSC has now announced its newly updated “Metastatic Navigator”. This comprehensive 100+page guide is full of important information for those living with stage IV breast cancer, including treatment options; quality of life issues; communicating with healthcare providers, family and friends about the disease; lists of questions to ask or consider; and resources available for additional assistance.

Newly added topic areas include hospice, palliative care, the decision to end treatment, legal decisions and other information for end-of-life planning, legacy projects, speaking to children about metastatic breast cancer, complementary and alternative medicine, as well as adoption and fertility.

No matter at what stage a woman is initially diagnosed with breast cancer, an estimated 20 to 30 per cent will recur or metastasize. There is currently no cure for metastatic breast cancer.

The guide is here:

Metastatic Navigator: A Young Woman’s Guide to Living with Metastatic Breast Cancer

More info here: youngsurvival.org.